Wednesday, May 26, 2010

There is a baby-boom going on with our Facebook Friends!

Alexandra's P.H.A.T.E. would like to say a special congratulations to some very recently new moms and dads. Congratulations to:

  • Susan and Andy--Son Milo Joseph Parks Cohen--born 5/21 (8 lbs. 1 oz. 19 inches)
  • Kim and Lance--Daughter Reese Ann Yoezle--born 5/19 (7lbs. 4 oz. 20 inches.)
  • Stephanie and John--Daughter Lauren Marie Rozman--born 5/10
  • Jen and Vince--Daughter Dalaney Marie Sylvester--born 5/24 (6 lbs. 5 oz. 19.5 inches)
Congratulations again. The fun is just beginning. Be sure to watch you children closely. They may be trying to tell you something. View our video about a condition rarely recognized early by new parents or peditricians called torticollis by clicking here.

Best of luck to all of you. Lord knows, Alexandra was the absolute best thing that has every happened in our lives.

Tuesday, May 25, 2010

Get your pictures in for May's PHATE kid of the month Contest

Meet Angelo. He was a winner of our monthly contest a couple months back. Send in your pictures today. May is almost over and our contest is still running strong. We have a bunch of pictures to vote on, but we still need more. Please send your pictures of your little one in his/her helmet to photos@alexandrasphate.org. we will put them on the site and vote on the winner the first week of June.

Sign The Plagiocephaly Petition

Awareness and Education are the key to helping families recognize plagiocephaly early. If you do not know what signs to look for, how will you ever know. This petition is to have medical professionals look for signs of plagio earlier in the babies lives. Please sign it and pass it along to as many others as you can.


Thanks,
Alexandra's PHATE

Monday, May 17, 2010

Creeping up on 500 fans on Facebook


Hi friends. Please be sure to tell everyone you know to become a fan of Alexandras PHATE on facebook. We are only 8 short of 500 today. Babies are born everyday in this great country of ours, and you never know when someone you know may need information about these conditions. Right now the numbers are becoming more and more staggering of babies affected by these conditions. So, tell your friends on facebook to:

  1. Go to Facebook
  2. Search Alexandra's P.H.A.T.E.
  3. Click like
or visit our website at www.alexandrasphate.org and click "LIKE" in the top right corner.


Friday, May 14, 2010

What a great site for Torticollis information!


Hi Friends. We just found a great site for torticollis information. You can visit it by clicking HERE. By checking it out, you can meet Deanna, she has had torticollis all of her life and has an amazing story to tell. Great Job Deanna!

Thursday, May 13, 2010

Cease and desist!!


Why would a multi-million (MAYBE BILLION) dollar corporation care if little Alexandra's P.H.A.T.E. has "their?" letters on our website? We were given permission to use them by the site they are on. Are we that threatening? Seriously, Aren't we all in this for the same reason-TO GET CHILDREN WITH PLAGIOCEPHALY THE HELMET THERAPY THEY NEED AND RAISE AWARENESS? Or is it about the all mighty dollar? Hmmmmmm. I wonder what MR. BIGS answer to that question is? I certainly know mine.

Saturday, May 8, 2010

New Family Forum opened today at Alexandra's P.H.A.T.E.


Hello friends. We have opened a new message board on our website. There you can find out even more information about Plagiocephaly, Torticollis and Cranial Remolding Orthosis. You can also, ask questions, interact with other members of the community, and keep up to date on all the goings on. Please visit our new forum and register by clicking HERE.

**When you complete your registration you have to hit the speaker button at the bottom that says "switch to audio puzzle". It will read you a saying that you have to type in to verify that you are not a bot! System will then send you a verification code to your email. It's quite simple, but that have to protect against the bots nowadays!

Friday, May 7, 2010

Actual South Hills Record Article (Page 1)



You can read the article about Alexandra's PHATE by visiting www.yoursouthhills.com. Thanks to Laura at the South Hills Record for taking the initiative to follow our story. Hopefully it will bring more awareness to the severity of Plagiocephaly and Torticollis.

Check out our article in the South Hills Record!

Hey Blogging friends! Our article was released yesterday in the South Hills Record. You can view the article by clicking the following link. http://www.yoursouthhills.com/southhillsrecord/article/local-family-finds-support-after-learning-about-rare-condition

Thanks so much for helping us raise awareness for plagiocephaly and torticollis.

Wednesday, May 5, 2010

Our Article will be in South Hills Record Tomorrow!

Hello friends. For those of you interested, the article about Alexandra's PHATE and Christopher's story will be printed in the Thursday edition of the South Hills Record this week. Check it out. I will more than likely post it here anyways, but just wanted to let everyone know. Thanks for increasing the awareness!

Monday, May 3, 2010

Positional Plagiocephaly Video

Click here to check out a great new Plagiocephaly video by a Dr. from Miami Children's hospital. It explains alot about the differences in skull shapes.

Hi Facebook Friends!


Hey Everyone. We are slowly approaching 500 FAns on our Alexandras PHATE facebook page. Help us get there by telling all of your friends to check it out. You never know when a friend of a friend of a friend might need information regarding Torticollis, Plagiocephaly or Cranial Remolding Orthosis. www.alexandrasphate.org

Meet Lily our April 2010 PHATE kid of the month winner


Thanks everyone for sending in your pictures. We will be having another contest in May. You can start sending your pictures today to photos@alexandrasphate.org for that contest. www.alexandrasphate.org

We have an interview with the South Hills Record Today!


The South Hills Record of Pittsburgh, PA is going to write a story regarding Alexandra's P.H.A.T.E.. We have our interview today to give the writer all of the information. As you may already know, we recently donated a helmet to a local family, and the SHR was kind enough to pick up the story. This could be the start of something big. Check out our site at www.alexandrasphate.org for more information.