Josiah's Cranial Remolding Orthosis

Thank you for putting together Alexandra's P.H.A.T.E website, and posting so much helpful information!

I did not know which picture to send, so I am sending several. He started wearing the STARband at 9 months, and is now 11 months old. He was borderline, and we hope that he only needs it for four months - until end of May. He had a terrible time sleeping with it the first ten days, but now seems to ignore it most of the time.

Thank you, Corrie

Lucy's new STARband

This is Lucy. She just got it about 3 weeks ago and doing wonderful with it. Lucy never cries when we take it off and on. I think ur little one has the same helmet as her.

Brayden's STARband

Hi guys,

I wanted to let you know that you have done a great job on the website! I can relate 100%! The only downfall was that my son went through 3 CRO's. He kept getting angry, raw, oozing red spots on his pressure points. They ordered a new one, thinking the original had been cut too much too soon. The second did the same. They finally realized that my son was allergic to the foam, and ordered the third one which we had no problems with! The picture I'm attaching was taken April of 2009. My son's name is Brayden, and he was about 9 months. We were camping, and took the boat out. Brayden LOVED being on the boat! Kids with CRO's can still have the same fun; there's nothing "wrong with them", as many people think, and are sometimes rude enough to ask! Oh! We are from Texas!

Thanks,

Rebecca

Lucias new STARband!

Hi all,

My little girl Lucia just got her starband about 2 weeks ago for brachycephaly - she had a hard time getting used to it but i think she's finally adjusted. Here are a few pictures of her with her starband, we decorated it with rub on stickers so that it could look more girly! We went on a picnic recently and there were lots of stares but for the most part people were smily, although unfortunately, there were people that were whispering and looking at her funny. One person even laughed at her, i didnt even know how to respond to that. My husband and I think she looks adorable!

Best of luck to everyone going through this, we love your support group! Its encouraging to see that other families are going through this and have this group as a resource.

thanks,

Patty

We have added some new appeal letters

We have added some new appeal letters to the "Insurance Help" section of our website. You can get to that link by clicking here. If you scroll to the bottom. We have some sample letters there. If you have one that you would like to share, please email it to contactus@alexandrasphate.org. We will remove all of your personal information. IT is the template of the letter and the verbage that we need to help families in need. Thx.

I just absolutely loved my first cake at my Birthday Party. Yummmmy!

Happy Birthday to Alexandra!

What a great weekend. Alexandra turned one-year old on Saturday 3/20/2010 and our beloved Buckeyes won their NCAA tournament game. On to the sweet 16. I can't believe that our baby is one year old already. How time flies!!

HAPPY ST. PATRICK'S DAY EVERYONE

FROM ALEXANDRASPHATE

Family in UK in need of assistance!!

Hello friends, we have been trying to provide assistance to a family in the UK with some Cranial Remolding Orthosis issues. The are in need of our help to come up with the 2000 pounds (3041 USD) necessary to get their 11 month old son a helmet. If you would like to make a small donation, please visit us at HERE to make a donation and we will pass it along to them.

Also, As you know March Madness is upon us. We are very, very excited about the upcoming tournament. Our favorite team, the Ohio State Buckeyes, have received a 2-seed, but have a very, very tough road to the trophy. GO BUCKS!!

Our business cards are here! Our business cards are here!

Hey all! Our business cards arrived today. We are picking them up and will be able to send them out to whomever may need some. Thanks to Stephanie at SPImage experts for the donation of our first 250 cards. She does great work! If you would like to visit her website for your business card needs please click HERE.

Thanks Again Steph!

What is plagiocephaly? Definition please!

You can get several definitions of the term "plagiocephaly" by clicking HERE. It is weird that there are so many different ones, but they all have to do with the same condition. If you would like more information about plagiocephaly, please visit our website at www.alexandrasphate.org.

PHATEs kid of the month

Please send us your childs picture with his/her cranial remolding orthosis. We will be selecting a child each month to be our PHATEs kid! Don't miss out. We will be posting the photos on our site in the kids gallery. Please send to photos@alexandrasphate.org

Alexandra's P.H.A.T.E. Torticollis at OneTrueMedia.com

This is our new Torticollis video. Check it out to see what signs to look for. Also, for more information, check out our website at www.alexandrasphate.org.

Make an on-line slide show at www.OneTrueMedia.com

Our new business card format

Hey all. Thanks for visiting our blog. We just finished our new business cards today and sent them to the printer for approval. We will be sending these to orthotists all over the country. Please let us know if you need any and we will be happy to get them out to you. Visit us at www.alexandrasphate.org to find out more.