Wednesday, January 5, 2011

Alexandra's P.H.A.T.E. Spaghetti Dinner Fundraiser and Chinese Auction

Hello Facebook Friends,

Alexandra's P.H.A.T.E. will be holding a Spaghetti Dinner Fundraiser and Chinese Auction on 3/12/2011 from 12:00 pm to 5:00 pm at the Findlay Township Activity Center in Imperial, PA.  100% of the proceeds will go to the foundation.

If anyone would like to donate items for the Chinese Auction, please let us know.  We could use all of the donations that we can get.

If you would like more information on Alexandra's P.H.A.T.E. or would like to make a donation, please visit our website at www.alexandrasphate.org or contact Gary at 412-860-4557.


TheARspecialists Signature

Gary Tate Jr.
President and Founder
Alexandra's P.H.A.T.E.
Pittsburgh, PA
412-860-4557
Gary@alexandrasphate.org

Cranial Remolding Orthosis? What's That?

A cranial remolding orthosis or helmet, is a device used to treat head shape deformities such as plagiocephaly, brachycephaly and scaphocephaly. The helmet treatment is effective in infants from 3-18 months of age. The earlier treatment is initiated, the better the outcome due to the decrease in growth rate as the child ages. The first cranial remolding orthosis was developed by Dr. Clarren in 1979. Thousands of infants have been treated with the STARband, which is the first cranial remolding device with FDA clearance and availability to pracitioners across the world. The STARfamily of cranial remolding orthoses are manufactured by Orthomerica.

The improvements in head shape are achieved by providing contact in the bossed areas and reliefs in the flattened areas. As the skull continue to grow, the reliefs are filled out and the skull rounds out. The amount of improvement is directly related to the amount of growth during their time in the helmet. The younger the infant, the faster the rate of skull growth. The ideal age for initiation of helmet treatment is 4-7 months.

What causes head shape deformities?
The most common cause of head shape deformation is supine sleep positioning. An infant's head triples in size in the first 12 months of life. During this time, their head is susceptible to external pressure that may influence it's shape such as supine sleep position, inutero constraint, car seats, baby carriers etc. Increased risk factors include, multiple births, premturity and torticollis. Torticollis is a condition in which a tight neck muscle on one side causes the head to tilt and turn. Physical therapy is recommended to stretch, strengthen and improve range of motion at the neck.

Repostitioning should be attempted in all cases as early as possible. If two months of repositioning does not improve head shape, a helmet may be necessary. Repositioning and tummy time is important for ALL infants. Since infants spend the majority of time on their backs, spending waking hours on their tummy is critical in strengthening for normal physical development. Click here for handouts on repositioning.
When is a cranial remolding orthosis needed?
Once any skull flatness or asymmetries are noticed, it is advised to ask your pediatrician to refer you to a craniofacial specialist. The specialist will evaluate the infant to rule out potentially more serious causes such as craniosynostosis(premature fusing of a cranial suture), assess head shape and determine if a helmet and/or any other treatment are needed. Pediatricians can prescribe a cranial remolding orthosis, but it is advised to see a specialist in order to rule out other potential, more serious issues. The earlier the infant is evaluated the better the overall outcome. Repositioning efforts must be attempted for at least two months. If these efforts fail to improve the head shape, a helmet may be required.
Will insurance cover a cranial remolding orthosis?
We see coverage from 0% to 100%. It is best to call your insurance and see if there are any exclusions in your specific plan. Cranial remolding orthoses fall under a sub category of orthotics and prosthetics which are under the category durable medical equipment. The device code is S1040. Contact us for more information
To read more about the STARscanner data acquisition system information click here.
If you would like more information regarding cranial remolding orthosis, or need assistance with an insurance appeal, please click here to fill out our contact form.

TheARspecialists Signature

Gary Tate Jr.
President and Founder
Alexandra's P.H.A.T.E.
Pittsburgh, PA
412-860-4557
Gary@alexandrasphate.org

Tuesday, January 4, 2011

Torticollis? Whats That?

Torticollis is a condition which affects the neck and spine in many infants. A common name for Torticollis is "wry neck". The literal translation is "crooked neck". It is a very treatable condition, but should be taken seriously and treated by your child's pediatrician.

The first signs of Torticollis may not appear until the infant is 2-3 months old. You may notice that your child stares into one direction. Your child may seem to hold his neck to the side, and you may even notice a sizable lump just above the infant's collar bone.

The condition affects the sternocleidomastoid muscle which connects the base of the skull to the collar bone. This muscle is the main muscle that is used to move the head from side to side. In an infant with Torticollis, the muscle is shorter on the side that the head is tilted to. With treatment, the muscle will grow and stretch; but if left untreated the condition may cause a permanent limitation of the infant's neck movement. If action is not taken, the infant's head may flatten on one side and the face may become mis-formed.

There are several theories as to what causes Torticollis in infants, but the main theory is the limitation of space inside the mother's uterus. The infant may be stuck in one position for a period of time and not able to move its neck, which in turn will affect how the muscle is formed. If the infant has had a limited amount of mobility of the neck in the womb, the muscle will be very stiff and tight.  
Once diagnosed, you will want to start a serious of stretching exercises with your infant. The most basic stretch consists of laying the infant on his or her back and rotating the head away from the tilt. This will
stretch the sternocleidomastoid muscle and relieve the tightness. One other very simple but extremely affective stretch involves laying the infant on its back and tilting the head gently to the side opposite of the tilt. Be sure to only stretch small amounts so that the muscle does not tear or become stressed. Watch your infant for any signs of discomfort, and never stretch past a comfortable pull. Repeat these exercises several times through out the day to lengthen and loosen the muscle.

It is also important to reposition your child's head. If the infant sleeps with its head turned one way a flat spot may shape on the side of the skull. To prevent this you will just need to keep repositioning the head to face the other way. Try to position the infant's bouncy seat or car seat so that the child will want to face the way against the tilt of the head. This will cause the child to reposition its head naturally and learn to turn their head to both sides.

The most common concern with Torticollis is a flat spot on the skull and abnormal face formations. Both of these can be easily prevented by exercise and repositioning. If your infant does develop a flat spot on its skull or face a helmet may be necessary to reform the skull. These helmets are fitted and checked weekly to assure they are working. The infant generally become very comfortable in the helmet, but they are expensive.

If you think your infant has Torticollis schedule an appointment with your pediatrician soon. If your pediatrician confirms your worries you will be set up with a physical therapist to learn the proper techniques and stretches tailored to your son or daughter. You will probably have a check up every 2 weeks to see how your child is progressing.

Although Torticollis can be worrisome to any parent, it is highly treatable. If your infant seems to be uncomfortable or in pain a trip to the doctor is necessary! With a little bit of stretching and exercise your infant can have a straight neck once again!



TheARspecialists Signature


Gary Tate Jr.
President and Founder
Alexandra's P.H.A.T.E.
Pittsburgh, PA
412-860-4557
Gary@alexandrasphate.org

Monday, January 3, 2011

Plagiocephaly? What's That?

 
What is positional plagiocephaly?
 
Positional plagiocephaly (play-gee-oh-seff-a-lee) is the term used to describe a flattened or misshapen head that may result from crowding within the womb or from an infant being placed in the same position (such as on the back) for long periods of time. 
 
Health care providers also use the term brachycephaly (bray-kee-seff-a-lee) to describe the flattening of the back of the skull. Positional plagiocephaly and brachycephaly often occur together.
The general term plagiocephaly refers to a head that is abnormally shaped from a variety of causes. Positional plagiocephaly is only one type of plagiocephaly. Other types can result from: skull sutures closing too soon (called craniosynostosis); twisted neck present at birth (called congenital muscular torticolis); and fluid around the brain (called hydrocephaly). Plagiocephaly can sometimes be severe and may require surgical treatments.
What causes positional plagiocephaly?
 
Positional plagiocephaly usually results from an infant being placed in the same position, such as on the back, for long periods of time. 
 
Babies' skulls are soft and are made up of several skull plates. These movable plates have space between them, called sutures, that allow the head to be flexible so that the brain can grow. If the head is left in the same position for long periods of time, the plates move in a way that leaves a flat spot.
The most common causes of positional plagiocephaly include:
  • Too little time spent upright—sometimes called "cuddle" time
  • Too little "Tummy Time" when the baby is awake and supervised
  • Too much time in car seats, carriers, and bouncy seats
Preterm babies are more likely to get flats spots on their heads because their heads are softer than those of full-term babies.
How can I help prevent positional plagiocephaly?
 
Most cases of positional plagiocephaly can be prevented (and sometimes corrected) by repositioning, which relieves pressure from the back of an infant’s head. Techniques for repositioning include:
  • Providing "Tummy Time" when your baby is awake and someone is watching. Tummy Time not only helps prevent flat spots, but it also helps the baby's head, neck, and shoulder muscles get stronger as part of normal development. Parents and caregivers can try Tummy Time 2 or 3 times a day, for short periods of time, until the baby gets used to being on the tummy. Once the baby begins to enjoy the position, parents can try longer periods of time or increase frequency of Tummy Time. [link to http://www.nichd.nih.gov/health/topics/Tummy_Time.cfm]
  • Changing the direction that your baby lies in the crib from one week to the next. For example, have the baby's feet point toward one end of the crib for a few days, and then change the position so his or her feet point toward the other end of the crib. This change will encourage the baby to turn his or her head in different directions to avoid resting in the same position all the time.
  • Avoiding too much time in car seats, carriers, and bouncers while the infant is awake.
  • Getting "cuddle time" with the baby by holding him or her upright over one shoulder often during the day.
  • Changing the location of the baby's crib in the room so that he or she has to look in different directions to see the door or the window.
Healthy babies should be placed on their backs to sleep for naps and at night to reduce the risk of Sudden Infant Death Syndrome (SIDS). It is important to note that even though back sleeping may affect the risk of flat spots on the head, flat spots are much less serious than SIDS and can often be prevented and treated. Parents should not stop placing babies on their backs to sleep, but rather should be sure to offer Tummy Time while awake and use repositioning techniques.
What are the treatments for positional plagiocephaly?
 
In most cases, flat spots on the head go away on their own once an infant starts sitting up and crawling. Repositioning (described above) can also successfully correct positional plagiocephaly.
If the problem is detected early, more severe positional plagiocephaly can usually be treated successfully under a health care provider's direction. Some options for this treatment include:
  • A custom helmet that prevents the baby's head from always falling to one side when lying down. Most importantly, it allows the baby’s skull to expand into a more rounded shape as the brain and skull grow.
  • Custom bands can also be used to help reshape a baby's head. Bands place a small amount of pressure on the baby's skull in the areas that need reshaping. A health care provider adjusts the band regularly as the baby’s head grows.
Using these treatments, the flat spots typically go away in about 2 months to 4 months.
If the abnormal shape is the result of some other disorder, and is not related to position, a health care provider may also recommend helmets and bands. Or, if the head is severely misshapen or the result of craniosynostosis, surgery may be required to correct the problem.

Talk to your health care provider about your baby’s head shape at each well-baby checkup.

Source: Eunice Kennedy Shriver | Nat'l Institute of Child Health and Human Development

If you would like more information on Plagiocephaly, Torticollis or Cranial Remolding Helmets, please feel free to conact us.

TheARspecialists Signature

Gary Tate Jr.
President and Founder
Alexandra's P.H.A.T.E.
Pittsburgh, PA
412-860-4557
Gary@alexandrasphate.org

PHATE's Kid of the Month--December 2010

Payton, December 2010
What an amazing year we had here at Alexandra's P.H.A.T.E..  Thanks again to everybody who was willing to lend a helping hand this past year.  Especially Blake Norquist and Valerie Thomas at Orthomerica.  We really appreciate our partnership.  We ended up having over 8,000 visitors to the website last year, and hope for a much better year in 2011.

Meet our PHATE's kid winners for December, 2010.  This is Payton .  Isn't she adorable?  It is incredible the amount of photos we get each month for the contest.  Hopefully, we can continue to provide parents the most up-to-date information, so they can deal with these issuses.

If you would like to enter your child's photo in the PHATE's Kids Contest for January 2011, please send your photos to Gary@Alexandrasphate.org.  We will post the photo in our gallery and vote on the photos at beginning of each month.



TheARspecialists Signature

Gary Tate Jr.
President and Founder
Alexandra's P.H.A.T.E.
Pittsburgh, PA
412-860-4557
Gary@alexandrasphate.org